In my last post I talked about Gavin passing out at school. Well, since then he's gone back and fourth with the dizzy spells. In the recent weeks/month it's become much worse. To the point of having to pick Gavin up from school. At first we didn't know if it was in his head, that he was still scared from his passing out episode. But then he seemed to complain more and it became heightened during excerise. Gavin had his regular cardio appointment two weeks ago. His echo showed heart function was good but his heart squeeze wasn't great. After further discussions, Gavin had more test ran... EEG (to rule out neuro issues), and lab work. Those came back normal so we moved on to the next test. Gavin had a treadmill/stress test done. Gavin lasted maybe 3 minutes before he became light headed. He was on a major incline but hadn't made it to the running part yet. They stopped the test and spoke with the cardiologist. Gavins Doctor came up to talk with us. During the test, Gavins blood pressure and oxygen levels dropped abnormally low. His oxygen levels got to a 70, we haven't seen that number since his pre-surgery days. His heart rate didn't even get up to a high rate like it should during excerise. It was decided to run more labs to rule out some other scenarios. One example would be a viral infection that has caused antibodies to not allow a good heart squeeze. Gavin has tested positive for Epstein-Barr Virus in the past. If this were the case, we would look into Gavin getting infusions. The next step is to do a tilt test and heart cath. The plan is to do them the same day (looking at sometime around Thanksgiving). Gavin needs at least 7 days prior to the heart cath to be off of Coumadin and on lovenox (yuck) injections. While our hearts are broken, we're still encouraged. Encouraged to be with an incredible team of doctors that carefully and dillegently make decisions for our son. Encouraged that we have a wonderful group of friends and family that go to our Lord on our behalf. And mostly encouraged that we serve a God that is bigger than all of this, that He will walk us through this, as He always does.
As always, smiling and being goofy. Love this kid!
Absolutely will keep him in prayer. *I have some scriptures typed up that I put on cards (keep in my purse on occasions). They are faith/power builders. Let me know if you want me to email them to you. Jill Gillen
ReplyDeletePraying for him. A recent saying I heard say that "the giant in front of you is never bigger than the God in you." Keep holding to God's hand and rely on His strength. Love you!
ReplyDeletePraying for him. A recent saying I heard say that "the giant in front of you is never bigger than the God in you." Keep holding to God's hand and rely on His strength. Love you!
ReplyDelete