Brody & Heart Walk

It's been awhile since I updated on Brody. I had the genetic testing done several weeks ago and got the results on Friday. I do not have the myotonic congenita, which means Brody does not have it. In the meantime I had to call Cooks about Brody. He ran a random high fever for a couple of days with no symptoms, except for occasional arm and leg pain. All new symptoms. And of course his stomach issues are becoming more frequent again. I called pediatrician and they advised me to let Cooks know. They went ahead and started Brody on a medicine that is used more commonly for seizures but also helps muscle cramps. Cooks called back today and the next step is run a new panel for myotonic dystrophy. Please continue to pray as we run more tests and try to figure out what is going on! 

Gavin continues to do great. Of course he's still tired and goes to bed before 7 most nights! We're trying to ease him into being more active again, especially with baseball coming up!!

 

(Passed out on his great-grandparents couch) He's super pumped about starting baseball this month! We can't wait to cheer him and the Bulldogs on!

The heart walk is coming up!! Mark your calendar for Saturday (morning), April 23rd! We will have our usual meet up place for pictures. I will post more details as we get closer. We're in the process of getting a shirt order link for people to be able to purchase Team Gavin shirts. So be on the look out!

And one more request for all our sweet prayer warriors. My cousins son is having open heart surgery tomorrow in St. Louis. If you all could lift up little Hudson, his parents, the medical staff, and extended family. It's been a crazy journey in our family with a couple of the boys having heart issues. It's been a great support system but I hate so much that they're having to go through this. At the same time I can't wait to see the bond between Gavin and Hudson, and their incredible testimonies they'll be able to share one day.