Today was just incredible. Our surgeon and the cardio team decided to give the heart cath one more chance. We were very surprised they wanted to do it. They were frustrated at first because it was being stubborn but it finally went through! The doctor told us the room was packed with people, Gavins situation was so rare, lots of eyes and ears involved. We got to see video footage of the procedure. They had to place SEVEN coils into the fistula. Gavins heart pressure in his tiny LV was 270!!!!! It jumped down to 140 after they placed the coils. This entire situation was a complete miracle. I want to share what a miracle it was... We weren't given much hope, we were told over and over how rare this is, how dangerous it can become, how this fistula could rupture, how serious it would be if this became open heart. Just multiple lies, thrown at us from Satan. It was just one thing after another of bad news. I woke up this morning feeling good, feeling refreshed (Adam too!). I slept last night (which is uncommon for me before a procedure) and told my family I felt like it was going to be a good day, a good outcome! So I just want to encourage each of you that are going through a tough situation. Don't ever loose hope, God is in control. He is still in the business of miracles!!! And even if this situation turned differently I would still praise our God, He is the Great Physician, He is the Healer, He is good, NO matter!!!!
Gavin is currently in ICU, I got a good picture of him showing his excitement over the fact that he didn't get another chest scar.
Look how good he looks?!? And the nurse was taking out his arterial line in this picture. So he's down to 3 IV's instead of 4!
The main reason he's in ICU is because they've never had a case like this. They want to keep close eye on the coils to make sure they do not move. He's currently having an echo done. Please pray that these coils stay in place!!
I want to share how much of an impact this little boy has on people he meets. His nurse absolutely adores him and we've been cracking up with his quirky words! When Dr. P came out to share the good news with us we all screamed, cried, jumped up and down and hugged the surgeon. Once I told Gavin he said "oh I would've been embarrassed, glad I wasn't there, and mom you need to be more careful, he has more patients to heal!" He then told the nurse "you think it's David and Goliath, it's more like Gavin and Goliath!" We all died laughing! And one more funny, "sorry my hair is looking rough, they wouldn't let me wear my gel today." It was one funny statement after another, it was so encouraging to see his sense of humor shining through.
Pray for Gavin to stop throwing up. He's been throwing up off and on for the last couple of hours. They've given him zofran and since it is not working they've moved to a stronger IV med, hoping it kicks in soon. We're ready to have the perky guy back that came out of surgery!
"You are the God who performs miracles; you display your power among the peoples." Psalm 77:14 |
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