Tuesday, February 16, 2016

Play Ball!!!!!!!!

Look who passed his stress test today with flying colors!!!!!!!! 
He lasted 11 minutes 30 seconds!!!!! His vitals all stayed within good range. The nurse and Doctor were so pleased with the way Gavin looked and acted when he was done. The last time he almost passed out, looked horrible, and was on the verge of vomiting. It's so reassuring to know that the procedure worked and the coils are doing their job!!!!! Gavin will go back in 3 months for clinic. He screamed, jumped and hugged Dr. O (more than once) when he found out he gets to participate in PE and play baseball this spring!!! Nothing brings me greater joy than seeing my boys happy and healthy. Thanking God for His many blessings. 

Rejoice always, pray continually, give thanks in all circumstances; for this is God’s will for you in Christ Jesus. 
1 Thess. 5:16-18


Wednesday, February 3, 2016

Thankful

Today was what I consider a good day. We really like the doctor and staff at Cooks. They did a great job at easing our fears and helping us understand more of what is going on. They ran several muscle, strength tests on Brody and then decided to do them on me! We started laughing because the appointment became more about me than Brody. They had Brody and I have a contest to see who could hold their hand in ice water the longest, Brody beat me! Within seconds my hand cramped up. I've always had foot cramps, sometimes legs especially after working out or running. When it's cold out my body tends to tense up pretty bad. I never thought much of it until talking to the doctor today and him checking my relfexes and the ice test. He decided he wants me to go to the adult MDA clinic in Tulsa and have some genetic testing done. He thinks Brody and I have myotonia congenita. 

http://www.mda.org.au/Disorders/Dystrophies/MyotCong.asp

We will know for sure after my tests come back. Myotonia congenita is a form of muscular dystrophy but it is the least severe, does not affect your lifespan. It's very manageable with medication. So if this is the case we will just watch Brody and treat him as need be. We're feeling thankful for good news today and answers!!! Thank you again friends for calling and texting me today. Your encouragement gets us through so much!!! 

Monday, February 1, 2016

Cooks Appointment

Thank you all for the kind words of encouragent, prayers, phone calls, etc. We have been overwhelmed with all the love and support shown to us. We got the phone call from Cooks. Brody will be seen this Wednesday at the MDA Clinic. He will have several tests ran and we're hoping to have more answers by the end of the day! I will update once we know more. Keep praying and believing in healing and restoration for Brodys body! God is faithful, He gives peace, He is good ALL the time! 

Psalm 29:11 says, “The LORD gives strength to his people; the LORD blesses his people with peace.”