Thanks Mom and Dad for creating special memories for the boys!
Adams sister came in town and we enjoyed doing fun activities with Adams entire family. We went to Margarittaville, ice skating, movies, game time and celebrating our nieces 16th birthday!
Gavin has only been back to school one day since break. They started last Thursday and were out Friday for a snow day. Today Gavin had a cardiology appointment in OKC. We went over Gavins transplant evaluation and how he's been doing since we've been discharged. This time a year ago, Gavin was on 13 medications. We have him down to 2 now, trying to make adjustments along the way. The med they took him off of in St. Louis was his beta blocker for migraines and vomiting. The cardiologist asked if Gavin had noticed changes or if we had since he's been off of it. At first we thought he had some more energy than before, but then discovered that comes and goes. Gavin had a day during break that he had chest pain/paleness, and continues to squat during play. He continues to go to bed early most nights (especially school or busy days) and sleeps in some. We will be interested to see how he does with going back to school more now. The doctor wanted him to keep up his playing (of course no impact sports or forced competive play) and see if he can build up a tolerance. We're hoping the more conditioned he is the better he'll feel. We go back to St. Louis on March 1st for another work up and evaluation to see where Gavin is at. We all agree (doctors included) that Gavin is just a mystery right now. We're hopeful and believing that Gavin can have a complete turn around and get back to how he was two years ago. We just need more answers to figure out how to make that happen. When Gavin was a baby I would always ask the medical staff "when will he do this? When will this heal? What's the next step? When will we be discharged?" And so on... the answer was always, in Gavins time. It's funny how that statement has continued to ring true throughout his ten years of life. I love my little mystery boy!
Thanks to everyone that continues to pray for Gavins health. Where would we be without all your prayers? Thankful for our God, that hears them all.