Gavin was NPO all day and took it like a champ! He is currently stuffing his face and watching the Good Dinosaur. Mid morning he had a CT angiogram of his heart and liver.
Then we went to ultrasound for his veins and arteries.
We came back to our room for a short time before we headed to the adult hospital to do another type of stress test with radioactive material. Today, we had an awesome nurse, our favorite so far! We hope we get her tomorrow.
Gavin showing her his motivational video that Mrs. B introduced him to. Check it out here. Just another example of Gavin being a witness.
Finally finished with our tests and heading back to the room to pig out! This guy was a trooper having to be NPO all day!
We came back to our room to see this. Gavin said he would hang this ornament on his Christmas tree and be thankful for his situation every time he saw it. We've had a lot of conversations about how well Gavin has done for his situation, some of these sweet angels on earth go to their Heavenly Father, way to soon. Which speaking of, the first day we were here, Code Blue on our floor was called. It's hard to watch your boys face as people start running out of your room to tend to the situation.
Tomorrow Gavin will have a heart cath at 1pm. We hope we will have a plan if we will proceed with transplant listing or go another route. Monday, Gavin will have a test with the electrophysiology team so hoping that will give us some answers too! Sorry for a jumbled post or grammatical errors. It's my bed time!
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