The GFR was a long process of blood draws for 4 hours, as usual Gavin smiled and joked with the medical staff through it all. He had the sweetest, happiest spirit. (Look at all the tubes he had to fill)
We had several rounds with the cardiology team and with the neurology team. We started the wean of one of Gavins medications too. We had "transplant school"... a little overwhelming. We went through a booklet and had question time with the nurse coordinator and pharmacy team. We signed the consent forms in case we get to that point. Tomorrow Gavin will have a CT angiogram of his heart and lungs. Hopefully we will have some time to squeeze in hospital school and a visit to the playroom. Friday he is scheduled for a cath at 1pm. Monday he will have a test with electrophysiology team. They want to rule out any arrythmia issues. In the meantime the doctors will consult with the adult heart failure doctors to see if/what other tests they can do on Gavin. We hope to have some more answers by Friday.
We finished our states puzzle and have played some rounds of golf during blood draws. Of course daddy wins every round. We miss everyone at home, especially Brody! Daddy is excited to get home to him this weekend and stay with him next week. Thank you all for the prayers, we continue to feel them!
“If you don’t know what you’re doing, pray to the Father. He loves to help. You’ll get his help, and won’t be condescended to when you ask for it. Ask boldly, believingly, without a second thought."
James 1:5 MSG
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