Latest Update...

To get everyone caught up... Gavin was admitted to OU on Monday. He was having chest pains, stomach pains, facial puffiness and nausea. Once we got to OKC clinic they decided he needed to be admitted for tests and observation. All of the labs for his heart enzymes came back great so we're thankful that a heart attack was ruled out.

For the last year Gavin has been on the decline with his heart. He's had multiple symptoms and episodes that's had everyone on their toes. Once we were settled the discussion of putting Gavin on transplant list came up. We discussed options on where we could do this and where the docs felt would be our best option. Since that discussion more doctors have collaborated and decided that we will try a cath/hybrid approach to try to eliminate more of the problem. They just can't guarantee that these fistulas Gavin has will not keep growing back. That is where transplant comes into play. The doctors (once everyone is back in town) will have a conference next Friday to make an official plan. In the meantime, they're not opposed to us going to STL to get the transplant ball rolling. But at the same time we may not have time to even start that process with how quickly they're wanting to move to the cath/hybrid procedure. So as of now we're putting the transplant on the back burner. Again, this is not a black and white situation. Gavin has a very complex heart anatomy and everything has to be taken into consideration. We need everyone to pray for the doctors discernment and wisdom in all of this. To be honest, while I was sad about transplant being in our (more near) future, I am also feeling a sense of relief. The last year has been rough and eye opening. I hate how much time Gavin has spent in a hospital and been put under for procedures. We just want him to have quality of life.

Gavin is currently in ultrasound to look at his veins and arteries in his neck and arms. If all looks good, we will get to go home tonight. While we wait, Gavin will be home bound again with minimal activity. Keep praying that we will have more solid answers on how to approach this situation.