Basically the electrophysiology team paced his heart fast and then slow to see if he had any arrhythmias. Thankfully no arrhythmias showed up. However, once Gavins heart rate went to 180, he had chest pain. The tests (as most of them we've had) we're inconclusive.
Gavin also had an EEG and consult with the GI team.
When the GI doctor came in Gavin started his preaching. The GI doctor said, (while looking at Gavins chest), "man you have some battle scars. Do you tell people, you should see the other guy?" He said "no, I know who the other guy is, the devil, I am on Gods side, the battle is won and the Devil has lost." You should've seen the doctors face. I am so proud of Gavins boldness and eagerness to talk about God. Love my little preacher man!
Gavin had hospital school today too. Trying to get caught up from his missed days last week!
Gavin also had some special visitors from the Blues hockey team! Of course with his candid personality they had the cameras rolling.
So we still have no definite answers. Which means we get to come home, unlisted. When we got here they wanted to take him off his beta blocker because they think it was exasperating his symptoms. They didn't want to discredit the fact that Gavin has these fistulas. But because the transplant tests are inconclusive they can't make a transplant determination on that alone. But since they've taken him off the beta blocker completely, the hope is Gavins symptoms will improve drastically. If he still passes out/becomes symptomatic, then they will have more sway on the transplant decision. They said they'll be in constant contact with Gavins doctors at home. And because we're thinking no on transplant right now does not mean we're done with them. We will come back to STL in 3 months for a repeat of some of the tests, and to revisit Gavins situation. They gave us a notebook full of Gavins history and information to carry with us in case of an emergency.
I am MORE than thrilled that we're holding off on transplant but also concerned about Gavins quality of life when it comes to playing. I'll be interested to see how much he plays once we get home. Please pray with us to not live in fear and trust that Gavin will be ok. We're going to try and make things as normal as possible and get back to school. The doctors want him to do what he can tolerate but try not to be the overachiever he is. He doesn't need to over push himself and learn to stop before he thinks symptoms are coming.
Pray for our safe travels home. The doctors weren't planning to send us home until tomorrow but we said we want to go tonight. Thankful they're letting us go!!
Thank you to all our family and friends that have gone out of the way for us. You all have stepped up to the plate in so many ways. We rely so much on our family and friends through the journey with Gavin. I pray that I will have opportunities to bless you all back. Seriously, know how grateful I am.
We're so thankful for the fresh set of eyes here and the thought process of making a major medicine change. Once again, God has given us another Christmas miracle- two years in a row. Feeling beyond blessed.
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