Day 4

Today, Gavin had a heart cath. It was diagnostic as there were no interventions needed. We still don't have any definitive answers as to what is going on with Gavin. They can tell there is still blood getting into the LV, but can't prove that's what is causing Gavins symptoms. Hopefully we will have a chill weekend. Gavin is absolutely exhausted from all the work up. Monday, Gavin will have a test where they interrogate his pacemaker to try and make him have an arrhythmia. Please pray we get some kind of answer from that test. Tuesday, Gavin will have a liver biopsy. It is part of the transplant evaluation. Fontan patients can develop liver issues so they want to rule everything out. 

 

 

The nurse had a Polaroid camera to take his pic before the cath. He thought it was the coolest thing ever! 

 

Sweet boy in recovery. When he woke up he was quite the comedian with his jokes. He yelled "roll tide" as they moved him from the stretcher to his bed. He was very polite to the recovery nurses and told them "thank you for taking care of me today!" They said they couldn't wait to take care of him Monday for his next procedure!

His favorite nurse said she would be back Sunday and would request she could be his nurse again. He said "perfect, we can have church together, did you know I was recently baptized? I took my first communion on Sunday and my brother led singing. My brother loves to sing all the time, in the shower, in the car, everywhere!" I love how he always makes sure he throws his spiritual wisdom in conversations and loves to talk about God. 

He quickly became nauseated and started vomiting for awhile after the cath. He became very itchy (which has happened before post cath) so they started an iv dose of Benadryl. He quickly fell asleep. About 8:30 he was finally able to stand up on his leg (they went in his left groin). He's pretty agitated at the moment and starting to itch again. Hopefully another dose of Benadryl will do the trick and he'll have a restful night!

Before the cath we were able to meet with the transplant psychologist. It's so important to have that time to share our feelings and ways to cope. It's also important for Gavin and Brody to have the same opportunity. Gavin will have more time with her next week. Gavin will start hospital school on Monday and will continue if we are here through the end of next week. 

Thank you all for praying, calling, texting or sending words of encouragement to us. We're so blessed with an amazing support system!! Keep praying for answers and if there is an alternative way to fix what is going on, the doctors will have divine wisdom on that!