Update

Gavin is awake and much more perky now after sleeping all day. All of his tests have come back normal, his coils are still in place! His pupils are still dilated, his facial swelling went down and his blood pressure went down. So he'll stay the night for observation. Pray for no more headaches or nausea.

Re-admitted

Gavin was discharged from the PICU to the hotel yesterday morning.

He was doing AWESOME, feeling great, and energetic. By yesterday afternoon he became irritable and tired. He slept for five hours, I had to wake him up. Then by last night he was back in bed at 8:30 and I had to wake him up again at 8:30 this morning. When he got up his face was swollen, eyes dilated, bad headache and his skin flushed. He was also very lethargic and nauseous. So after consulting with doctors and nurse we brought him back to the ER. They've ran multiple tests and decided to have him re-admitted for observation. His BP is elevated and he's slept all day. Hopefully we will have answers soon! Keep praying friends. 

Gavin and Goliath

This will be a jumbled post, typing fast, so ignore grammatical errors...

Today was just incredible. Our surgeon and the cardio team decided to give the heart cath one more chance. We were very surprised they wanted to do it. They were frustrated at first because it was being stubborn but it finally went through! The doctor told us the room was packed with people, Gavins situation was so rare, lots of eyes and ears involved. We got to see video footage of the procedure. They had to place SEVEN coils into the fistula. Gavins heart pressure in his tiny LV was 270!!!!! It jumped down to 140 after they placed the coils. This entire situation was a complete miracle. I want to share what a miracle it was... We weren't given much hope, we were told over and over how rare this is, how dangerous it can become, how this fistula could rupture, how serious it would be if this became open heart. Just multiple lies, thrown at us from Satan. It was just one thing after another of bad news. I woke up this morning feeling good, feeling refreshed (Adam too!). I slept last night (which is uncommon for me before a procedure) and told my family I felt like it was going to be a good day, a good outcome! So I just want to encourage each of you that are going through a tough situation. Don't ever loose hope, God is in control. He is still in the business of miracles!!! And even if this situation turned differently I would still praise our God, He is the Great Physician, He is the Healer, He is good, NO matter!!!!

Gavin is currently in ICU, I got a good picture of him showing his excitement over the fact that he didn't get another chest scar. 

Look how good he looks?!? And the nurse was taking out his arterial line in this picture. So he's down to 3 IV's instead of 4! 

The main reason he's in ICU is because they've never had a case like this. They want to keep close eye on the coils to make sure they do not move. He's currently having an echo done. Please  pray that these coils stay in place!! 

I want to share how much of an impact this little boy has on people he meets. His nurse absolutely adores him and we've been cracking up with his quirky words! When Dr. P came out to share the good news with us we all screamed, cried, jumped up and down and hugged the surgeon. Once I told Gavin he said "oh I would've been embarrassed, glad I wasn't there, and mom you need to be more careful, he has more patients to heal!" He then told the nurse "you think it's David and Goliath, it's more like Gavin and Goliath!" We all died laughing! And one more funny, "sorry my hair is looking rough, they wouldn't let me wear my gel today." It was one funny statement after another, it was so encouraging to see his sense of humor shining through. 

Pray for Gavin to stop throwing up. He's been throwing up off and on for the last couple of hours. They've given him zofran and since it is not working they've moved to a stronger IV med, hoping it kicks in soon. We're ready to have the perky guy back that came out of surgery! 

"You are the God who performs miracles; you display your power among the peoples." Psalm 77:14

A MIRACLE!!!!!!!!!!!!

Our surgeon just came in, they decided to try ONE more time to do JUST the cath.... Y'all it WORKED!!!!!!!!!!!!!!!!!!! So many prayers answered, beyond what we thought! Do you know what that means?!? They didn't even have to cut his chest. They went through the GROIN!!!!!!!!!!! Thank you God, thank you.  Gavin is heading to ICU. I'll update more later. 

8:44 Update

We received our first phone call. The nurses words "I just have to say he is such a sweet boy, he went right to sleep, was not nervous at all." Well duh, we knew that! ;-) They have started all the lines, arterial, central, etc. They're draping him now to start the procedure. We will get another call in an hour. 

7:35am Update

Gavin just went back, followed by the "Gavin, Gavin, Gavin!" chant. Dr. P came in and said he slept in his Team Gavin shirt last night. He's such an incredible surgeon! Gavin was nervous but still had his sweet smile. We will update as soon as we can!

 

Number 5

Tomorrow we check in at 6am for a 7am surgery. Gavins surgeon, his surgeon partner and the cardiologist will all be in the operating room. Gavin is the only case for the day. This will be Gavins 5th major heart surgery. He's had a total of 3 open heart surgeries (Norwood, Glenn and Fontan) and 1 open chest (pacemaker). The difference between open heart and open chest is the lung bypass machine where they have to stop his heart. If Gavin only has to have the open chest procedure he will not have to be put on lung bypass. Please pray with us that the hybrid will work. While we're super bummed it even came to this, we're believing and knowing there will be complete healing for our Gavin. God has brought him so far. He is tough, he is strong, he is resilient. We're so proud of his unwavering courage and strength. Pray for peaceful rest for all of us as tomorrow will be a long day. 

The sweet hotel staff hooked Gavin up with lots of dessert tonight!