Home

Came home to Gavin's "BFF's" and a welcome home sign! Gavin absolutely loved it! 

These two were thrilled to be reunited. Brody was timid, worried he'd hurt his brother. He loves his big brother so much! 

Gavin was due for an injection at 10:30, sweet Brody held Gavin's hand to "help him be brave!" I love my boys and their relationship. 

There's No Place Like Home

Finally. We're heading home! Thank you all for the love and prayers. Means the world to us. We're so blessed. 

For where two or three gather in my name, there am I with them.” (Matthew 18:20 NIV)

My Superhero

I love this little quote. It always makes me think of G and all the kiddos out there that go through so much. Speaking of, a young lady came up to visit with us during Gavin's procedure. She was born with HRHS. We got into a discussion about scars and how it affects the children. Gavin goes in spurts of embracing his scars and hating his scars. Recently, he told us how it's ugly and he doesn't like it. The young lady has a tattoo on her arm that says, "His scars cover mine." How cool is that? I can't wait to share that with Gavin, to help him when he struggles with the appearance of his chest. 

If you're wondering, we are still at the hospital. Waiting on Gavin's IV antibiotics to finish. Waiting on Walgreens to bring the injections for the week and waiting on discharge papers. We will go home at some point this evening! 

        My precious boy, sleeping away. 

Today

Today has been a good day. Of course, we're tired from last nights dinging machines, lab draws and vital checks. 

We're hoping to go home today. We had a refresher course on Coumadin. We survived our second injection, a little squirmy but no tears! Now we are waiting on the case manager to find us a home health infusion nurse to do Gavin's daily lab draws. The nurse will also pre-fill Gavin's lovenox injections so they will be ready for me to administer. The hardest part of all of this is going to be keeping Gavin from injuries. He is a very active kiddo. The main concerns are bruising and risk of bleeding. 

I'll update again once we find out when we are going home.

Gavin ordering more lunch because his soup "had no taste"... Gotta love hospital food. 

     

Nana and Gavin having a shoot out. 

Can you page the nurse?

Gavin is an awesome patient. He always has been. He never complains, and does exactly what they ask of him. Tonight he's had to lay completely flat and keep his leg still for at least 4 hours. He finally turned to me (after no complaining) and said "mom can you page the nurse?" I asked him why, and he said "I need to ask her if its time to walk yet!" So we walked two times around the nurses station and he talked my ear off the entire time. I just love him and his sweet, talkative personality. Now he is resting peacefully. 

Several have asked how he is doing. He is great! He experienced some blurry vision in post op, but that seems to be gone now. And this is the first time in almost 7 years, post anesthesia he hasn't thrown up. Woo hoo!! He is eating and drinking like a trooper. Of course, he's had nothing to eat or drink all day. He did a great job of not complaining, even though his cath was delayed by 3 hours! 

Tonight he took all of his meds and we survived his first lovenox injection. He said he "almost cried." I thought to myself, me too buddy, me too! But we made it through and I think we will do just fine with it at home! 

Thank you again to everyone that has checked on us and prayed for Gavin! We hope to go home tomorrow after his dose of IV antibiotics. Sweet dreams! 

Update 2

Gavin had two stents placed. We will start antibiotics, Coumadin and lovenox injections tonight. He said depending on how we feel about giving Gavin the injections will determine when we go home. Which we've done feeding tubes, so I can handle giving him a shot. The injections will help level out his INR levels for the coumadin. Gavin will get weekly lab draws to make sure his INR levels are good. He will also require a special diet on the coumadin. Gavin's had coumadin before but the lovenox injections are new. If everything goes as planned tonight we will go home tomorrow night. It's been a long day, thankful for the support and medical technology! Can't wait to see my baby! 

Update

There was a delay due to an emergency situation. Gavin went back at 4:00pm. It should take about 3 hours depending on what they have to do. I'll update once we hear from the doctor. Thank you all for the supportive texts, calls, messages, etc. We feel the love and the prayers!