Update on Gavin

Before I post about first grade I want to give everyone an update on Gavin. Two weeks ago we had the ER incident. Gavin went to the neuro and the ophthalmologist for a check up. They do not think its Horners Syndrome & were hoping it would resolve on it's on. By the time we saw the ophthalmologist, his eyes were looking more normal. Well, now it's back, but more episodic. Some days you barely notice it and other days its more prevalent. Tomorrow will be the two week mark since we saw Dr. G last, so we will make another appointment with him to make sure all is good. 

The home health nurse came off and on for several days, Gavin had 4 lab draws in one week! His poor veins were sick and tired of all the poking and prodding. His levels have finally dropped to a more normal range, so we get to go two more weeks without a lab draw. The cardio office is trying to get us an INR home test kit, so we can just prick his finger instead of getting lab draws. Even though Gavin takes the sticks like a champ, it's hard for a six year old to understand why he is having to do this so often.

Gavin finally got outside to play with his friends and ride his bike. He was exhausted after a couple of hours. Thankful he had the energy to get out and play!

A couple of weeks ago we lost a dear friend, Larry Seidel. It's only appropriate that I pay tribute to him on Gavin's blog. When Gavin was born, we lived with the Seidels in Edmond. They took us in their home, fed us, washed our clothes, and treated us as family. They never hesitated to welcome us in their home, even when Gavin had appointments and other surgical procedures. Their home was Gavin's first home. A couple of years ago the Seidels moved to Texas to be closer to their children and grandchildren. So I put their Edmond house key in Gavin's baby book. We will never forget their loving home. We will forever cherish the memories we had with Larry.